闲梦江南梅熟日 发表于 2007-6-30 15:59显示全部帖子
这也是我为什么为过去剂量过低而懊悔。
我在明知有效而并无明显副作用的情况下过于保守，是愚蠢的错误。
发表于 2007-6-30 16:16
唉，不为难自己了。
在摸索中前进，犯错是不可避免的。
只希望随着经验的增加，能做出更多正确的，对我妈有利的决定。
发表于 2007-7-3 21:41
谢谢各位。：）
今天遇上了一位好医生，是肿瘤中心的教授，愿意从病人角度考虑问题，而不是只关注是否通过临床实验是否正规上市是否会给他们带来风险。
我把几个网站都介绍给他了，他表现出浓厚兴趣。
听我爸说，后来他去医生办公室，刚好遇上这位老医生给其他医生介绍我妈这个病例和DCA，并啧啧称奇。
相比之前太多“不发表评论，不感兴趣，不想了解”的医生，他真是让我非常感激。
希望能有更多的医生参与进来，和病人一起努力。
大家一起加油吧！
本帖最后由 拯救你 于 2010-9-20 20:55 编辑
发表于 2007-7-4 13:56显示全部帖子
whao你好
我妈最近状态很不错。
服用药物如下：
DCA 30mg/kg; 辅酶Q10 150mg 硫辛酸 300mg 谷胱甘肽750mg
VC1500mg VE 600mg B190mg 复合维生素1片 水飞蓟益肝片221mg （6片）
辅酶Q10、Vc按照说明书用量的5倍服用；
硫辛酸、谷胱甘肽、B1照说明书用量的3倍服用。VE目前还是2倍，水飞蓟正常剂量。
复合维生素用的是善存银片，一天一粒。
供你参考。：）
硫辛酸和谷胱甘肽淘宝上有。我现在用的是从美国带回来的，牌子是vitamin world。在美国有很多连锁店。
淘宝上也有这个牌子。
GNC也是不错的牌子，不过据某些同学反应价格比较贵一些。
另外，最开始那几天多关注一下身体反应吧。在30mg/kg的剂量下，我打算一周停药一天。
原帖由 zgl0523 于 2007-7-6 10:03 发表
准备给母亲用DCA了，请教：
1、开始用量多大合适？我初步计划6mg/kg/day，每隔2天加2mg/kg/day，加到10后隔5天加一次量，直到20mg/kg/day。
2、VC和辅酶Q10用量这么大，会不会低血糖？我妈妈血糖低，我想减少 ...
zgl0523你好
我觉得每个人身体状况不一样，DCA又是大家初步摸索的东西，很难由此及彼地把别人服用情况套到自己身上。
我个人认为，刚开始用比较低的剂量再逐步加量是稳妥的做法。
VC和辅酶Q10应该不会造成低血糖的，应该是DCA可能会影响血糖。
水飞蓟是护肝用的，如果找不到也没关系，先开始用DCA吧，这个我认为不是必需的。
副作用问题：
我妈从一开始服用就没出现可以明确认为是DCA引起的副作用。
我加量到30mg/kg也是才没几天，暂时没有副作用。
谢谢你的祝福。也祝福您的母亲，祝福所有人。
发表于 2007-7-9 18:53翻译一个thedcasite上的新病例。很鼓舞人心。
英语实在很一般，如果有错漏，请大家指正。
另外，对于thedcasite，有些病友比较置疑，总觉得那些病例可能都是伪造的。
我没这么觉得。
因为奇迹很少。也有人服用无效，最后还是过世了。
如果要宣传，是不是也应该宣传说有人五年前开始服用DCA，现在好好的，什么毛病都没了。
而在这个网站上看到的，大家能提供的，也都是几个月来的暂时的好转，将来会是怎样，大家都不知道，大家都还需要等待。
翻译如下：
我在这个论坛上已经逗留了两个月了，现在我决定把自己用DCA的一些经验跟大家分享。
我是替一个没电脑的朋友写的。
我不知道太多的细节，不过我决定把我所知道的写下来，也许会有点用处。
她的肿瘤长在食道附近。三年前发现的，一个非常大的肿瘤，她最后不能吞咽任何食物，也几乎不能喝水。
我得告诉大家她是一个吸烟很厉害的人，也喜欢喝酒，有时一天会喝很多。
她在Netherlands（她是荷兰人，生活在荷兰）的Anthony van Leeuwenhoek医院接受了化疗和放疗。医生在她胃部开了一个洞，这样她可以饮食。长话短说，治疗很成功，肿瘤消失了。
有一年的时间，状况很不错。但是放疗影响了她的声带和食道，导致她呼吸困难。因此医生在她的喉咙开了一个洞，让她可以呼吸。
大概有一年半的时间她没有出现转移复发。但是一年前医院发现她的肺部有肿瘤。左肺一个大肿瘤，压迫到神经并造成严重疼痛，对此医生给予morfine & plastrums药物进行治疗。并且在双肺有好几个其他小肿瘤。
她拒绝做化疗。但是同意做对左肺的大肿瘤进行放疗希望能让它缩小，至少减轻疼痛。医生告诉她对于其他肿瘤目前没有什么办法了。因为这些肿瘤已经在肺扩散，并且她的体质已经过于虚弱，无法接受更多的放化疗。因此医生决定针对最大的那个肿瘤进行放疗再说。
医生告诉她这是不可能完全消失的了。他们只可能尽量延缓进展。
在这个时候她听到关于DCA的谈论，要我在网上查查。我几个月前就查了，但是我不知道能在哪儿买。一直到三个月前，我发现了buydca网站。我告诉了她，她立刻买了。她大约在两个月前开始服用。我发现了这个网站（指thedcasite），把我能知道的信息都告诉了她。
我们惊呆了。她在放疗后服用了两个月的DCA，在她回去做扫描和x光检查之前。她的辅助剂是一种绿藻（Chlorella），以及她儿子从泰国给她带回来的维生素补充剂，对癌症病人很游泳的，里面有种红油。
昨天她拿到了检查结果。大肿瘤不见了。他们在双肺都没找到任何转移。双肺都很干净了。一看到这个结果他们就通知了她。他们不知道她在用DCA，不相信肺部什么都没有了。
当然我们知道，肿瘤说不定还在潜伏，说不定什么时候就回来了。但是在此时此刻，我们是如此高兴，因为她的肺部干净了，我们简直无法相信。
她会继续服用DCA。她从荷兰回来后我会问她一些问题，我想她会降低剂量并继续服用绿藻之类的。我希望这个信息对大家有用，能鼓励更多的人不要坐等而是自己寻找，除了现在已经接受的治疗外，再试试其他的办法。并且最好能找到一个医生愿意进行跟踪和指导。
pili3
Member since May-22-07
2 posts Jul-06-07, 10:05 AM (PST)
I have been checking out this site since 2 months now & decided to inform you about our experiences with dca.
I am writing for a friend of mine who has no access to any computer.
I don't know to many details & but decided to write down what I know, m
I don't know to many details & but decided to write down what I know, may be it is of some use.
She developed cancer in the esophagus approx. 3 years ago, a very big tumor, she couldn't swallow any food & hardly any water in the end.
I have to mention that she was a heavy smoker & enjoys beer and wine & sometimes a stronger drink on a daily basis.
She had this treated with a combination of chemo & radio therapy in the Anthony van Leeuwenhoek hospital in the Netherlands (since she is Dutch & lives in Holland). The treatment included a combination of Radio & light Chemo therapy. And at some point they had to open a whole in her stomach so she could feed herself. Making a long story short. The treatment was a success and the cancer dissapeared. For a year things were going quiet well, but she was having some trouble with the effects of the therapy & this made it very difficult for her to breath as the radio therapy had damaged her esophagous & vocal cords. So unfortunatelly they had to make a whole in her throat so she could breath properly.
Approx 1,5 years she was cancer free, meaning the tests did not show any metastasis. But unfortunatelly about half a year ago the hospital found she now had cancer in the lungs. One big tumor in the left lung, that was pressing on nerves & resulted in heavy pains for which she was given medication with a form of morfine & plastrums etc. and several other small tumors in both lungs.
She refused to do any more chemo therapy. But agreed to do radio therapy only for the big tumor to try to make it smaller so at least the pain would be reduced. The doctors told her that for the other tumors for the moment nothing else could be done. Since they were spread all over both lungs and she was to weak for the moment to endure more and many radio and chemo. So they decided to hit the big tumor with radio therapy and then wait to discuss things again.
The doctors had told her that it would be something that would go away anymore. It would only be something that they could try to delay.
In the mean time she had heard somebody talking about DCA and asked me to look it up at the internet. Which I did a few months ago, but I couldn't find were we could purchase it. Until 3 months ago, where I found the buy DCA site for vetenerian use. I informed her and she immediatelly bought it. She started with it approx. 2 months ago and I had also found this site with blog & passed on to her any information I could find. Such a good initiative this site is!
What can I say, we are stunned. She has been taking the DCA for two months right after her Radiation therapy, before she had to go back for a scan & xrays to see the results. She has been taking the DCA along with a supplement of Chlorella on a daily basis & some sort of Vitamin supplement her son got for her from Thailand that is very good for cancer patients, wich has some sort of red oil in it.
Yesterday she got her results, the big tumor is vanished and gone. & They cannot locate any metastasis on neither lung. Both lungs are clean. As soon as they saw that they instantly called her at home. They don't know she has been using DCA and could not believe the lungs are clean.
Ofcourse we know you never know with cancer and it might still be lingering and come back. But for the moment we are all so happy because she is clean and can't believe it.
She will continue with the DCA, I will ask her about this when she returns from Holland, I assume on a smaller level and will continue with the Chlorella etc as well.
I hope this information is of any use and will encourage other people to not sit by but do their own personal research and try things along with the therapy that has been given to them. And try to find a doctor that is willing to try and monitor things with them.
God Bless all
发表于 2007-7-11 14:22
近几日又有了新的困惑，就是服用大量辅助剂，对于治疗到底起到了什么作用呢。如果真的如有的观点所说，反而促进肿瘤增长，那可真是太糟糕了。
只是想起住院的时候医生给大多数病人都会用VC注射液，开辅酶Q10，vE，有些病人也输谷胱甘肽，从主流来说，应该还是认为抗氧化剂对治疗肿瘤有帮助吧。
离复查的日子越近一日，就越忐忑，对于自己这些日子的剂量，补充剂，饮食产生怀疑。
昨天有不认识的人找上门来询问DCA的事情，说是医院的医生跟她熟，把我们的联系方式告诉她了。她哥哥骨癌（？）肺转移，肺部积水很严重，医生没什么办法了，只是每天挂消炎的药。
这个医生并非我妈的医生，大概是那天教授在介绍我妈这个例子和DCA的时候他听到了，过后拿了病历看。
医生说，如果是听到的这个病例，他是不会相信的，只是他亲眼看过病人（我妈妈），所以建议他的这个朋友来试试。
我觉得这位医生不征求我们同意擅自公开病人联系方式应该是违背职业道德的。
从另外一个方面想，从他的话里无疑再次证明，我妈妈是有好转的。对于她的增强信心有帮助。
我给这位病人配了一周的DCA。昨天服用两次。今天打电话来说，胳膊的严重浮肿有好转，人觉得舒服一点，但是呼吸很困难（之前就一直吸氧的）。
这个病例可能不太好跟踪。另外病人情况已经比较严重，我对此也不是很有信心。如果以后还有他的消息，我会再上来汇报。
发表于 2007-7-12 07:26
谢谢清清的祝福。：）
谢谢油版主。
我妈以30mg/kg剂量服用已将近半个月（为防止外周神经损伤停药两天），无任何副作用，我在想，是否还可以考虑增加剂量。
还是，应该等这个月末做了检查再决定？